A new diagnosis: your first conversations
A gentle starting point for gathering questions and finding support, at your own pace.
What this resource offers
There is no single right way to feel after a diagnosis. You can take time, invite someone you trust to appointments, and write down questions for your healthcare team. This draft conversation guide is not medical advice and has not yet been reviewed by ALBE’s clinical or editorial team.
Helpful questions for your next conversation
- What does this diagnosis mean for our family, and who can explain it?
- Which appointments should we discuss with our healthcare team?
- Who can help us connect with other families in Hong Kong?
Every person’s needs and journey are different. Use this information to support a conversation with a qualified professional, not as a substitute for personalized advice.
