Guide
ALBE guide · draftAgeing well and changing support needs
A practical, person-centred guide to healthy ageing, noticing meaningful change, seeking a careful medical assessment, and planning sustainable support for adults with Down syndrome.
Support should continue as life changes. Explore later-life wellbeing and family support. Bring questions about health, care and future planning to qualified professionals.
Your pace. Your priorities. Your journey.Guides for the life you’re living
Guide
ALBE guide · draftDaily living, self-advocacy and future planning
A practical, person-centred guide for teenagers and adults with Down syndrome, families and supporters in Hong Kong. It covers travel, money, home routines, supported decision-making, rights, service navigation, housing and future care. This is educational information, not individual legal, financial or medical advice.
Guide
ALBE guide · draftFamily wellbeing, siblings and circles of support
A practical, person-centred guide to family communication, sibling relationships, caregiver wellbeing, respite conversations and consent-based community support for families connected to Down syndrome.
A few useful things to consider
- Start a dated baseline page with the adult: routines, abilities, interests, communication and usual support.
- Book a routine health review and ask which checks or referrals fit the person’s current needs.
- If something has changed, write a short timeline and bring it to the clinician rather than diagnosing it at home.
- With the adult’s consent, make a support map naming backup carers, services and emergency contacts.
- Contact HKDSA or another local provider to ask about current adult, family, vocational and later-life support pathways.
Helpful places to begin
Refine your searchSupport service
Curated selection · draftFamily support, close to home
Explore family services, counselling and parent connections in Hong Kong.
Support service
External resourcePositive ageing & ongoing family support
A starting point for later-life wellbeing and stronger community connections.
Community connection
External resourceFamilies supporting families
Regional parent networks for shared experience and connection in Hong Kong.
Support service
External resourceLifelong support in Singapore
Children’s and adult development, enrichment and family advocacy in Southeast Asia.
Community connection
External resourceReal voices, shared understanding
Discover lived-experience stories through HKDSA’s Human Library Hub.
Learning resource
External resourceNDSS healthcare guidelines hub
A gateway to pediatric, adult and ageing-related Down syndrome healthcare guidance and clinician discussion topics.
Guide
External resourceHong Kong Family Health Service: Down syndrome information
A Hong Kong government health page that explains its Hospital Authority information source and points families toward discussion with doctors, hospitals and community organisations; its detailed content is prenatal screening.
Guide
External resourceHong Kong Rehabilitation Services
Official overview of Hong Kong rehabilitation-service categories and the Central Referral System.
Support service
External resourceDistrict Support Centres for Persons with Disabilities
Official information on community living-skills training, referrals, case management, peer support and school-to-community transition support.
Learning resource
External resourceSupported Decision Making Program
A U.S. government explanation of person-centred supported decision-making and tailored support. Apply Hong Kong law and local professional advice separately.
Guide
External resourceAlzheimer’s Disease & Down Syndrome
NDSS overview of risk, baseline, possible signs, clinical evaluation and support planning. International educational guidance; not a diagnosis or Hong Kong clinical pathway.
Support service
External resourceHKDSA services and contact
Hong Kong starting point for asking about Integrated Family Support Services, Integrated Vocational Rehabilitation Services and current contact routes.
Learning resource
External resourceKeeping people with Down’s syndrome well before and during dementia
Down’s Syndrome Association (UK) page linking a free digital workbook and ageing resources for families and staff. International guidance; check local relevance.
Community connection
External resourceHKDSA SHARE Project regional parent networks
A Hong Kong parent-support route describing regional networks, counselling, parent training and consent-based contact with experienced parent ambassadors.
Support service
External resourceHong Kong disability respite service information
Hong Kong Social Welfare Department information on day and residential respite, application routes and vacancy enquiries.
Learning resource
External resourceNDSS local support overview
An international overview of the kinds of local Down syndrome organisation support that may include parents, siblings and grandparents.
Guide
External resourceHong Kong official rehabilitation pathway
Government overview for identifying possible Hong Kong routes across assessment, education, training, employment and community rehabilitation.
Community connection
External resourceHong Kong Down Syndrome Association service units
Published Hong Kong contacts for family resources, training and employment-related enquiries.
Community connection
External resourcePhilippines association directory entry
A regional lead for family support and child programmes in the Philippines, with an explicit directory caution to verify details.
Community connection
External resourceDown Syndrome Association Malaysia
The official site describes PSDM as a national voluntary organisation and publishes Kuala Lumpur contact details and English/Bahasa Melayu site options.
Support service
External resourceNUH paediatric genetics and metabolism service
Genetic evaluation, counselling, testing and longitudinal care at NUH.
Support service
External resourceDay Activity Centres for adult skills and daytime support
Daytime care, daily-living training and community-living skills for eligible adults.
Support service
External resourceAdult Disability Homes and respite referral pathway
Official referral information for long-term residential care and short-term respite.
Support service
External resourceMINDS future-care planning for families
Caregiver planning, referrals and personalised care plans for intellectual disability.
Support service
External resourceSpecial Needs Trust and personalised care planning
A trustee-led trust and care-planning route for a dependant’s long-term care.
Guide
External resourceLasting Power of Attorney information from the Office of the Public Guardian
Official explanation of appointing trusted donees for future decisions if capacity is lost.
Guide
External resourceSingapore Government guide to wills and estate planning
Official basics on what a will can do and assets that require other arrangements.
Guide
External resourceVerify disability status for Singapore support schemes
Official guidance on checking or establishing disability status for relevant MSF schemes and services.
Support service
External resourceHome Caregiving Grant for eligible home-based care
AIC’s means-tested monthly support for eligible families caring at home for a person with disability.
Support service
External resourceCaregivers Training Grant for approved care courses
AIC support that subsidises approved training courses for eligible caregivers.
Support service
External resourceAssistive Technology Fund for assessed devices
Means-tested SG Enable support for eligible people needing assessed assistive technology.
Guide
External resourceRead Singapore’s Enabling Masterplan 2030
MSF’s national disability-inclusion roadmap and links to its report and progress updates.
Community connection
External resourceWorld Down Syndrome Day and DSA(S) community events
DSA(S) event page for recurring Down syndrome awareness and community activities.
Community connection
External resourceDisability-led advocacy and inclusion with DPA
An independent cross-disability organisation led by and for persons with disabilities.
Community connection
External resourcePeer connection through the CaringSG caregiver network
Caregiver-led charity connecting and supporting special-needs caregivers in Singapore.
Guide
External resourceFind a local PDK/PPDK community rehabilitation centre
A government directory for locating nearby community rehabilitation centres.
Support service
External resourceTaman Sinar Harapan residential care and rehabilitation
JKM residential care, protection and rehabilitation for eligible learning-disability clients.
Support service
External resourceDignity & Services supported living and work skills
Community-based daily-living practice and employment training for adults with learning disabilities.
Support service
External resourceSiloam House community home and work support
A small-home model combining daily living, work placement and community participation.
Learning resource
External resourceMIND Down syndrome service directory
A Malaysian directory of organisations and services that include Down syndrome.
Guide
External resourceAmanahRaya trust planning for a disabled beneficiary
Published trust-administration information for families planning asset protection.
Guide
External resourceAmanahRaya will-writing service
Published will-writing, custody and estate-administration service information.
Support service
External resourceJKM older-person welfare institutions
Official safety-net information for older-person residential welfare institutions.
Support service
External resourceCheck JKM disability and caregiver monthly assistance
Official guide to JKM monthly schemes for eligible disability, care, employment and training situations.
Guide
External resourceUse the JKM OKU facilities and concessions checklist
JKM booklet compiling published OKU supports and concessions, from services to transport and education.
Guide
External resourceFind disability policy, action-plan and service links
KPWKM portal linking disability policy and action-plan information with JKM services and support.
Community connection
External resourceConnect with state-level Down syndrome associations
PSDM directory of state and affiliate groups for local family connection and programme referrals.
Community connection
External resourcePlan a World Down Syndrome Day activity
Annual 21 March awareness-day information and tools that Malaysian groups can use for inclusive local activities.
Support service
External resourceUP Manila clinical genetics and genetic counselling
A public academic genetics service with counselling and postnatal chromosome-analysis capacity.
Guide
External resourceFind your local PDAO for disability information and coordination
Legal basis for local disability offices and their information role.
Guide
External resourcePDAO and social-welfare coordination for adult support referrals
Official guidance on needs assessment, referrals and community integration.
Support service
External resourceElsie Gaches Village residential safeguarding service
DSWD residential care for a specific safeguarding-focused client group.
Guide
External resourceCourt rules on adult guardianship
Primary court rules on petitions to appoint a general guardian.
Guide
External resourceCivil Code guide to wills and succession
Official primary law on wills and estate succession in the Philippines.
Guide
External resourcePWD ID card application and PRPWD registration
Official PWD ID application, local issuing and registry guidance.
Guide
External resourcePhilHealth PWD coverage and registry verification
Current PhilHealth guide to PWD coverage, registry matching and walk-in registration.
Guide
External resourceRA 10754 PWD discounts, VAT treatment and education assistance
Official rules for published PWD concessions and qualified education support.
Support service
External resourceDSWD crisis assistance for a person or family
Government crisis assistance for assessed medical, food, transport, education and other needs.
Guide
External resourceMagna Carta for Persons with Disability: rights framework
Official legal framework for equal rights, participation and barrier removal.
Community connection
External resourceDSAPI Happy Walk community inclusion event
Association announcement for a family-focused Down syndrome inclusion walk.
Community connection
External resourceNational Down Syndrome Consciousness Month
Official annual February awareness observance under DSAPI’s auspices.